My Story: My Second Ectopic Pregnancy - Part 2: ER surgery, my infertility, and lessons I've learned

2ndEctopic-part 2

I have experienced 2 ectopic pregnancies in the past 2 years. You can read about my first ectopic pregnancy HERE. This is part 2 of my second ectopic pregnancy. You can find part 1 HERE.

...my doctor kept stressing that I needed to get to the ER immediately. I was crying but also in a little bit of denial. I asked her questions that probably sounded more like delusional rambling as I tried to process it all, "How? How was this missed again? ...this means I am closer to 11 weeks pregnant then. This isn't real...my husband isn't home, I can't take my kids to the hospital with me." The only answer she had was that she was sorry, I needed to be at the hospital in an hour or less, and the hospital knew I would be coming. For the second time in just 2 years my life was in question and it was a point where no one was sure what was going on.

I hung up the phone and was physically shaking. I could barely hold my phone to call Cory and tell him that we were going to be reliving the same misery of an ectopic pregnancy again. I think because we have been married 10 years, and have experienced pregnancy loss so many times together he knew exactly what had happened as soon as he heard me crying out the words "Cory...".

30 minutes later we were all in the car. Cory dropped me off at the ER, and then made arrangements for my kids. It felt surreal walking into the ER again sobbing to say the words "I think I am having an ectopic pregnancy again? My doctor sent y'all a message saying I was coming?" Then to get immediate sad eyes from the check-in nurse who leaned across the table to squeeze my hand and say "I am so sorry, we will take care of you."

I sat in the waiting room silently crying. I am sure I looked like a broken mess to people passing by. Cory came just a few minutes before another nurse called me back to go over my history, symptoms, etc. “When was your last period?” “What is your pain level?” “How many pregnancies have you had?” “How many live births?” With each question felt more like a kick in the gut.

I was first in line for an ultrasound. You know something is wrong when it takes two people to do your ultrasound and it’s insanely painful. Just like in the past an ultrasound was “inconclusive” for a pregnancy but I did have 2 large ovarian cysts. My blood work also showed that my HCG level had somehow come down! Everyone seemed to take a sigh of relief and was ready to stamp “miscarriage” onto my paperwork. My gut couldn’t believe it. I blamed it on PTSD and the trauma of my previous ectopic. The on call OBGYN talked to me on the phone with plans to send me home. Cory and I kept stressing how uncomfortable that made us, neither of us were sure. Finally my sweet nurse made the suggestion that I go home, but then I come back the next afternoon for new blood panels.

So we went home.

After more blood work, and another ultrasound everyone was left scratching their heads. Once again it was the fun game of “Where is the pregnancy?” I was in more pain, and was only comfortable with my knees close to my chest. I was given some glorious concoction of pain killers and gave consent to a CT scan and then we waited.

As soon as the ER doctor came in I knew. “Cysts are larger than we thought…you have some blood pooling……and we the radiologist is pretty positive it is an ectopic pregnancy, I am so sorry.” He kept talking but I was sobbing. I would need emergency surgery again and the on call OBGYN would be into talk to me about details.

Not even 5 minutes later, before we had time to process anything a nurse came in and said “I’m here to take you up to surgery.” I was wheeled up to surgery and still crying. I don’t really remember how long it took me to get prepped. Before I knew it the OBGYN was telling me it would be an “exploratory surgery.” …well neat, I’d love for you to “explore” in my abdomen. “First we will do a gentle D&C, remove the 2 large cysts, then go to the other side and check for an ectopic pregnancy.”

Cory and I said a prayer before I was wheeled off to the surgical room. Once again I was in a freezing cold room with everyone covered in surgical masks, gowns and gloves. I scooted onto the hard surgical board and quietly cried while they put the oxygen on my face.

Sure enough there was an ectopic pregnancy and they left my last fallopian tube. I woke up in HORRIFIC pain. The worst pain I have ever been in. Worse than my c-sections, worse than my last ectopic surgery. I was in recovery for hours but determined to go home. Worst. Decision. EVER. I should have let the nurses admit me when they offered. My pain was out of control. I could not sit up by myself or walk standing up straight. The bed could not shake or move at all without me being in horrific pain. My sweet husband was up with me like a newborn making sure I stayed up on my painkillers.

After a long few weeks I finally started to physically feel more “normal” and went for my post op check up. I recovered well physically and we talked about what this meant for me moving forward. Even though my last tube was saved it is “diseased” and most likely scarred. My risk for another ectopic pregnancy is really high. I am not the typical “ectopic pregnancy” case. I present everything weird and abnormally. This makes my ectopic pregnancies really hard to diagnose, I am pregnant for a long time with them, and it gets scary fast. If we were to get pregnant on my own and it was another ectopic pregnancy my other tube would need to be removed. In my doctors words “it’s not worth the risk of your life.” Which I knew but it was shocking to hear out loud. IVF is my safest option to be pregnant again. I never thought IVF would be my reality or something I would be even in breathing distance of. I now have the medical history or labels of secondary infertility, recurrent pregnancy loss, and tubal infertility.

Things I have learned from this experience:

  1. I am SUPER strong. I can go through a lot and survive. One of my “worst case scenarios” became my reality. I wish I could say I went through it gracefully but I did not. It was really mess, ugly, and dark at times. But I survived. I woke up and tackled one day at a time. Now that I am 9 months down the road from the experience I keep seeing new strengths from this experience.

  2. I am way more empathetic. This experience has helped me connect with a whole new group of people I never would have had the opportunity to meet. The infertility and pregnancy loss community is a tight knit one. We know a certain kind of loss that no one else can quite understand. There is an instant connection.

  3. I am way more brave and bold than I have ever been before. This year has been so hard but I have put myself out there more than I ever have. I have found new talents and discovered more things that I love to do. I feel like I have more drive and confidence than I ever have before.

Above all because I am more grateful, I am closer with my children and husband, I have a stronger faith and relationship with God and the Savior.

If you are going through an ectopic pregnancy know that there is hope. I have felt the really ugly, dark, heavy, and terrible emotions of ectopic pregnancy. You are not only grieving the loss of your baby but also the loss of your body. In my case I am also grieving the loss of my health and fertility. It is really really painful and hard but it does get easier. Please reach out if you need support. You are stronger than you know and you are never alone!

My Story: My Second Ectopic Pregnancy - Part 1: infertility, recurrent pregnancy loss, and the mistake

2nd Ectopic - part 1

Go HERE to read my first experience with ectopic pregnancy.

I had mentally bargained with myself, and probably a little bit with God.

"Ok, I have had 2 miscarriages, 1 of which I almost bled to death. I have had an ectopic pregnancy and I lost my left fallopian tube. It was awful, but I have had my turn. I've learned a bunch, now we can move on."

A few months went by...I physically healed, I went to therapy for a few months, I was still struggling with grief but I was much better at coping, and I was functioning again. I decided to put my traumatizing fear aside and have faith to give my body another chance to have a healthy pregnancy. I was so sure that now it was "my turn." For my 5 previous pregnancies, I was pregnant in 3 months or less. It had never been a struggle to get pregnant before only to STAY pregnant. I was reassured by two different doctors that my chances of having a healthy pregnancy were good even with one fallopian tube. One doctor said, "you have the perfect pelvis!" ...uhhhh, thank you(???), weird/best compliment ever, but it gave me hope. 

INFERTILITY

3 months went by, nothing. I decided to buy HCG tests. 3 more months, nothing. I bought more HCG test and pregnancy tests in bulk on Amazon. 6 more months, nothing. Every month felt like a kick in the gut. Wondering if you're pregnant every month is a real mind game. Especially when period symptoms can also feel so much like pregnancy symptoms. 2 years had gone by since we had started trying to get pregnant. The beginning of December 2017 I went to see my OBGYN who also thought it was strange we were struggling with infertility. She ordered Clomid, progesterone, and baby aspirin for my next cycle. 

It was busy with Christmas shopping, parties, traditions, end of term school projects, programs, etc...being pregnant left my mind. I realized my period was a few days late and figured it was probably stress. After the removal of my tube my periods weren't super consistent anyway.

December 22nd, the weekend before Christmas, on a whim I took a pregnancy test. It was negative, again, of course, and I threw it in the trash. I kept hustling around the house cleaning to get ready for Christmas. I went into clean my bathroom and happened to glance in the trash at my previously discarded pregnancy test. "Huh, that looks positive...... WAIT! That IS positive!" Heart racing I lunged for my Costco sized supply of pregnancy tests. My next test was positive too. For wanting to be pregnant and trying for so long I was honestly surprised. I frantically called my doctor, voice shaking, tears starting to puddle up in my eyes then quietly roll down my cheeks from both fear and excitement.

"Should I go in, do I have a blood test, should I start the progesterone now, how long have I even been pregnant, what if I already took something I shouldn't and hurt the baby?!" So many questions frantically flew out of me a million miles an hour. The nurse was so kind but said because of the Christmas weekend they would be leaving the office early and wouldn't be back until Tuesday. A blood test wouldn't matter so I should try to stay optimistic. She suggested I start the progesterone and also the baby aspirin. I was ready to cancel all holiday travel plans, one of my biggest fears was I would start to lose the baby and have to do it in front of everyone. I didn't want that vulnerability, heartbreak, and pain put on display. The nurse reassured me to go on our holiday 8-hour road trip to see family and have a great time.

I floated blissfully through Christmas. I was on cloud 9, already talking to the baby through my thoughts, and thought this was the most perfect Christmas gift. This is what we waited for. This is what the 2 years of struggle, infertility, and loss had been for. I learned a bunch, my relationship with my husband Cory grew, my testimony was stronger...we had made it. A few days later, on December 27th we started the drive to my mom's house. Cory and I quietly talked all things baby during the long drive. We only had 45 minutes until we got to my mom's house and then I felt it.

RECURRENT PREGNANCY LOSS

My heart jumped into my throat and I immediately thought "No...no way! It's not happening again." The rest of the world phased out into a blur, Cory sounded muffled and far away as I went to check with my mind racing. "Please no, please, please not again." Sure enough, I was bleeding. Bright red blood that I knew all to well from my 3 previous losses. I slowly and quietly said, "I'm bleeding." Cory's face went white and he looked at me with disbelief. I hit the dashboard and I'm pretty sure I swore under my breath as I went numb. He said something but I don't really remember the rest of the drive. I think I prayed, begged, and bartered with God, and I tried to convince myself that this wasn't happening again. This was "my turn" after all. This was our perfect little gift. Surely this would not happen again, it had to be a joke. 

We pulled into my mom's driveway and my kids jumped out of the car excited to see grandma. I hurried to call the nurse. I demanded to not be put on hold, I needed to talk to someone now. I told the nurse in between sobs what was happening. She said "oh sweetie, I am so sorry this is happening again. It sounds like a miscarriage and it will just happen. There is nothing we can do. Go to the emergency room there if the pain is too much and get back here to see Dr. Z when you can, we will get you right in." 

I hung up and we sobbed. We sat in the car crying and hugging for so long my mom and sister came to check and see if we were ok. This was my nightmare. Losing another baby and now telling everyone about it with all my broken pieces exposed. I couldn't stop crying, I was hysterical. My kids started to worry so I pulled myself together and we opened other Christmas gifts that had been waiting for us. I was like a zombie trying to smile and be excited. I told Cory I was not going to stay. I needed to go home ASAP because one I wanted to grieve alone, and two I needed to be close to my OBGYN since my pregnancy losses have gone from "normal" to life-threatening fast. The next day was my son's birthday. The plan was I would make his Star Wars birthday cake, we would open presents, spend the day together, and I would fly home that evening. I somehow managed some sleep and then had a fun birthday with my son. Making birthday cake is one of my love languages and Hayden's cake turned out just how I imagined it in my head. He loved his scooter and other birthday surprises. I loved celebrating him, and kissed on him and my daughter as much as I could. The bleeding kept coming and I knew the pregnancy was over.

Cory drove me to the airport, we hugged goodbye in front of security for a long time, he kissed me at least a dozen times, and I caught my flight. I listened to a podcast about healing from recurrent pregnancy loss and grief the whole flight home. A close friend picked me up from the airport to take me home. She lovingly loaded me up with food, bath salts, lotion, and said to call if I needed anything while I was home alone. I had been quietly emotionless like a robot until I walked into my home, closed the door behind me, and sank to the floor in a broken heap with sobs that sounded more like howls. I limped upstairs to bed and fell asleep.

The Mistake

My doctor was able to get me in the next day. Going into the OBGYN when you are in the middle of a pregnancy loss is hell. There is no other way to say it. It's hell. Baby pictures and pregnant mothers everywhere. Gag. After an ultrasound that showed nothing in my uterus, my doctor said she thought it was a miscarriage and my body had done all the hard part on its own. She diagnosed me with recurrent pregnancy loss, we talked about what that meant for my fertility,  and to come back in about a month.

3 weeks went by with "recurrent pregnancy loss" still ringing in my ears but I still felt weird and just off. I knew something wasn't right and I started to have pain on my right side. At my checkup, I mentioned the pain to my doctor and she replied it was most likely a cyst from ovulation. It had been a month since I first started bleeding so that timeline made sense. I had a pelvic exam and my doctor was even more convinced I had an ovulation cyst. She also said "The chances of having another ectopic pregnancy opposite from the diseased tube is very, very, very, super unlikely. That would be way rare." I asked for blood work just to double check my HCG level. Three days later I still didn't have my blood results. Since it was a Friday and I didn't want to wait anymore I called my doctors office. The nurse said she would track my blood results down for the lab. 15 minutes later my doctor's office called. When I answered it was my doctor, not the nurse, and I knew immediately something was wrong. 

"Megan, your HCG from Tuesday has gone up to 147 since your initial 42. You need to get to the ER immediately. ....I am so sorry, but we missed it again and made a mistake. I think this is another ectopic pregnancy."

to be continued....

I stop at this part of the story not to be extremely annoying and leave a giant cliffhanger, but to point out a few things this part of my story taught me.

1. For a long time, I felt like God had given and then cruelly taken something away. Especially after I waited for 2 years to be pregnant again! How was this the nature of God? What I lacked to see then, blinded by grief were the blessings that were flooding in through this trial. Family and friends that rallied to comfort me like angels. We were able to find a flight at the perfect time so I could be with Hayden on his birthday and get home asap. Inspiration to know something was going on with my body and I should have it pursued. God has a perfect love for each of us. God doesn't remove trials but He does strengthen us. God doesn't turn His back on us but is constantly lifting us. We just have to look for His love and goodness. Once I actively started looking for even the smallest blessings my heart started to change and feel lighter.

2. The world keeps moving even when it stands still for you. Be kind to yourself while you feel all the emotions. Selfcare is so important. I was on my own while my family was in Utah for about a week and a half. I wanted to be alone to grieve and I didn't want my kids to miss out on fun holiday time with family. I spent quite a few days locked up in my room. I was in a super dark place. I didn't shower, personal hygiene went out the window, I didn't get dressed, and I barely left my room to eat. One Saturday on a whim I threw on a bra, some sweats, and a comfy shirt. I put my hair up in a messy bun and drove myself to the movies. I watched The Greatest Showman on my own with snacks and a blanket. It was one of the best things I could have done. It reminded me that life was still happening outside my room and I could move with it if I wanted. It would be insanely hard, but life was not going to wait for me. 

3. Be my own advocate, trust my gut and what my body is trying to tell me. I know doctors are super knowledgeable. I really appreciate them and all the schooling, work, and training they go through. However, I am my best advocate and no one knows my body like I do. Thank goodness I pushed and asked more questions about how I was feeling. Thank goodness I requested another blood test just to double check. If I hadn't pushed my outcome could have taken a much more tragic turn.

The next part of this story is in some ways more difficult. It is really when everything blew up and where my PTSD stems from. I am starting to get to a place where I am grateful for this first part. It was long and a drug out process but it helped prepare me for something I didn't even see coming. 

My Story: My First Ectopic Pregnancy - miracles through heartbreak, loss & trauma

MyStory.jpg

Years ago, I remember hearing about ectopic pregnancy or tubal pregnancy, and thinking "oh my goodness I cannot imagine going through that." I stored it in my mind in the "that will never happen to me" category.

August of 2016, I laid having my 5th ultrasound for the week, surrounded by newborn pictures, and a book titled "My Mommy is a House." I was super aware of the crinkly paper I was laying on, trying to distract myself from everything else. I was holding my breath and outside my body at the same time wondering "how is this happening?"

3 months previous I had my second miscarriage, and now my body seemed to be miscarrying again for the third time. My symptoms all pointed to miscarriage. I was devastated having two losses in a row, and now 3 all together. I was given multiple rounds of Cytotec. (Cytotec is a miscarriage-inducing drug. It encourages the body to miscarry faster.) However, my HCG levels ever so slowly continued to rise instead of drop like in my previous miscarriages. I knew my HCG numbers weren't high enough to be a healthy pregnancy but no one could seem to find it. Ultrasound after ultrasound searching for a pregnancy somewhere in my body. It was like a cruel game of "Where is Waldo?" 

My arms were a bruised mess from dozens of blood draws over the next 4 weeks. My OBGYN sent me to the emergency room because of a sharp pain in my back and my blood levels still rising. Unfortunately, the ER was so busy that night and no one really understood what was happening to me. The radiologist in the ER thought she saw a "fetal pole," in my uterus. I was sent home. I was broken, I was pregnant but also not pregnant for a month since my bleeding had started. I was 9 weeks pregnant, but not. The book "My Mommy is a House," in my doctor's ultrasound room still haunts me. I was not a house, what was I?

I was scheduled for a dilation and curettage procedure, also called a D&C two days later. The plan was to do the surgery and then test tissue hoping to find a pregnancy. I knew it was not the best plan, but there were no other options. I was broken and tired. I just wanted everything to be over. I walked into the hospital really early on a Friday morning while my husband parked the car. As I walked over to be checked in my mind was swirling with fear, anxiety, and grief. Then a loud voice came over all the speakers in the hospital. It was an Adventist hospital and they were praying. Everything and everyone stopped. The speaker asked blessings for the patients in the hospital who were sick, having surgery, or other procedures. He blessed the families of the patients and expressed feelings of gratitude. It was only about a minute long prayer, but I immediately felt like God was aware of me. 

More miracles unfolded while I was getting prepped for surgery. A beautiful picture of Christ happened to be hanging in my little curtain enclosed room. My doctor ordered another very last minute ultrasound. The ultrasound tech had an awful bedside manner but was the best tech in the hospital, and had worked there the longest. He went from super grumpy to serious as soon as my ultrasound began. I immediately started crying, fixated on the picture of Christ while my husband answered his questions. "Yes, she has had an ultrasound before, dozens!" "Her HCG level keeps climbing." "We were just here in the ER room 2 days ago." "An ectopic pregnancy has been thrown around but no one has confirmed it." "This has been going on for a month." "What is happening?!" The technician unable to confirm anything hurried out of the room.

As I was starting to sign papers to confirm I was going to have a D&C my doctor received a phone call. It was the head radiologist saying it was an ectopic pregnancy and apologizing for my experience in the ER room earlier that week. I needed surgery and fast. Ectopic pregnancies can be fatal, and damage the surrounding organs. I had been growing this ectopic pregnancy for weeks and it needed to be removed immediately.

Another miracle, they just "happened" to have more time scheduled for the operating room, and there just "happened" to be everything they needed close by for the new surgery. My mind went blank as I held my husband's hand, people swirled around me to quickly getting me prepped for a more invasive surgery. I suddenly felt a warm, heavy hand on my shoulder bringing me back to the chaos. My anesthesiologist lovingly said "breathe," and coached me to take deep breaths as tears rolled down my face. My nurses and that anesthesiologist will forever be angels to me. They were kind, loving, reassuring, and I could feel that they honestly cared for me.  

Tears continued as I moved from my hospital bed to the hard cold surgery table. The anesthesiologist continued to hold my hand and wipe my tears while my arms were being strapped down. The next thing I remember is waking up in recovery to my worst fear. I did have an ectopic pregnancy. The pregnancy had grown so much I was leaking fluid and blood into my abdomen. My left fallopian tube had expanded so much it was damaged and needed to be removed. My doctor offered to show me pictures of the surgery to show what had happened. Horrified and in shock, I said I absolutely did not want to see those photos ever in my life. She gave me a hug and said how sorry she was for my loss. 

Then we went home. I entered the hospital pregnant and I left not pregnant, in pain, my fallopian tube removed, and not sure what would happen next. 

I physically recovered well. My OB reassured that I should be able to get pregnant again, with a 25% every month.  Emotionally I was a wreck. I was sad, angry, and trying to put back the pieces of my hopes and dreams.

Life continued like nothing happened. My kids had school, laundry was waiting, dance class was still every Thursday, but I was shattered. Grief was my constant companion, but I also felt how mindful Heavenly Father was of me. There had been angels both heavenly and earthly. Friends, family, my mom, church leaders, and others rallied around us. Miracles continued to happen. I had felt carried and loved. 

I learned how strong I could be. I learned how our trials are refining us to be better. I learned how much more empathy I could have now for others struggling like me. I have never felt like my Father in Heaven was more aware of me than that crazy morning in a little hospital room. He continues to be mindful of me and my family.

I am still working through my grief. I am not fully healed, but I am moving forward. I often fall apart out of nowhere. I remind myself it's okay to not be okay.  I know that with time, faith, and patience my broken heart will be healed and God has more blessings for me than I could have ever imagined.

If you have experienced an ectopic pregnancy or are going through one now, please know that you are not alone. My ectopic pregnancies have all felt so isolating and it has been hard to find people to relate too. Grief is normal and dark, but it does get easier. I am here any time., please leave a comment, email me, or send me a message on social media. I would love to cry, vent, talk and celebrate with you. 

Psalm 147_3.jpg

Be kind to yourself. Give yourself time, have lazy days, treat yourself, go outside, meet with friends, and always extend grace to yourself. Most importantly know you are never alone because of a loving Savior and Heavenly Father who love you perfectly. I would also invite you to pray, even if it has been awhile or if you don't have much experience with prayer. I know you will feel God's personal love for you and can heal your broken heart.

Hang in there! You're beautiful, a warrior capable of amazing things, and have a purpose. Hope, peace, and love will come.

If you would like more resources about ectopic pregnancies, check the following links below:

Ectopic Pregnancy 101

ectopic.jpg

Bringing awareness to pregnancy loss and ectopic pregnancies is something I am really passionate about. I never want any woman to feel as alone as I did. I have had 2 ectopic/tubal pregnancies. Both pregnancies were really scary, traumatic, and life threatening. Both times I needed emergency surgery and my left fallopian tube has been removed. I am still recovering mentally, & emotionally from my experiences. An ectopic pregnancy was one of those “it will never happen to me” things I had listed in my head, but when it did it was devastating.

An ectopic pregnancy is when a fertilized egg implants outside of the uterus. Most often ectopic pregnancies are in a fallopian tube. Ectopic pregnancies are also sometimes called tubal pregnancies. A fertilized egg CANNOT survive and grow outside of the uterus.

Only 1 in 50 or 2% of pregnancies are ectopic.

50% of all ectopic pregnancies happen for unknown reasons.

An ectopic pregnancy is considered a medical emergency since it can damage nearby organs and can cause life-threatening blood loss.

Symptoms can include pelvic pain, mild cramping on one side, vaginal bleeding, nausea, weakness, dizziness, & low blood pressure. If the tube has already ruptured, a mother may show symptoms of shock.

Ectopic pregnancies are diagnosed using a combination of ultrasound and blood test. An ultrasound is used to show where a pregnancy is located. Blood tests are taken 48hrs apart. Low hCG levels, or hCG levels that rise in an erratic pattern, suggest an ectopic pregnancy.

o prevent complications, treatment is needed. In the early stages, medications may be sufficient. Later stages require surgery.

If a woman is able to get pregnant after an ectopic pregnancy, there is at least a 10% chance of having another ectopic pregnancy. If she’s had two ectopics, the recurrence rate is 30%.

Grief after an ectopic pregnancy is normal. I know I have grieved both the loss of my babies, but also the fallopian tube that needed to be removed. If you have had an ectopic pregnancy know you are not alone. There is hope, and you can find peace again.

If you have questions or an experience with ectopic pregnancies please share below...